The MAGIC Foundation India: Upcoming Events

The MAGIC Foundation India, affiliated to The MAGIC Foundation, USA, was set up to spread the awareness of various children’s growth disorders, across India. This website is intended to provide general educational information and to help users more easily access information about children’s growth disorders.

Turner Syndrome Upcoming Conferences

Turner Syndrome Upcoming Conferences (Hindi)

Turner Syndrome Conference Bangalore 2020

Bangalore:

Jan 12th, 2020: 9.00 am to 2.00 pm.
Venue:  Grand Magrath Hotel
Contact: Deepa Kannan / Shyam Kannan
Registration: [email protected]

PGMER Chandigarh:

Jan 15th, 2020: 1.00 pm to 6.00 pm
Venue:  APC Auditorium
Contact: Dr. Inusha Panigrahi at

Registration: [email protected]

Kanpur:

Jan 18th, 2020: 11.00 am to 6.00 pm
Venue:  Merchants chamber Auditorium of UP, Civil Lines.
Contact: Aditya at 91-7355932712
Registration: [email protected]

AIIMS Delhi:

Jan 19th, 2020. 9.30 am to 4.00 pm
Venue: Conference hall AIIMS.
Contact: 
Registration: [email protected]

Growth Awareness Day

September 20th is Children’s Growth
Awareness Day.

READ MORE

Growth Disorders In Children

Children fail to grow for a variety of reasons. Hormones, genetics, sleep, nutrition, general health and exercise are all factors for normal growth. If you suspect that your child is not growing normally, you are in the right place!

Congenital Adrenal Hyperplasia

Congenital Adrenal Hyperplasia is an autosomal recessive genetic disorder, which means that it affects males and females in equal numbers, and that it requires both parents to pass on a gene in order for it to manifest as a disease. For a child to be born with any form of CAH, both parents must carry a gene for the disorder.

Growth Hormone Deficiency

Growth hormone (GH) is a protein made by the pituitary gland and released into the blood in brief pulses. The major way that GH promotes growth is by increasing levels of the hormone, insulin-like growth factor-1 (IGF-1), and its carrier protein, IGF binding protein-3 (IGFBP-3), in the blood.

Optic Nerve Hypoplasia

A child with the Syndrome of Optic Nerve Hypoplasia, also known as Septo Optic Dysplasia or DeMorsiers Syndrome, has under-developed optic nerves. The optic nerves carry messages from the eye to the brain. ONH is the single leading cause of blindness in infants and toddlers.

Russell Silver Syndrome

Russell-Silver syndrome (or Silver-Russell syndrome) is a rare genetic disorder characterized by delayed growth in-utero (IUGR) that spares head growth (meaning the newborn has a head size that is large for his body) and ongoing postnatal growth failure.

Small for Gestational Age

SGA (small for gestational age) generally describes any infant whose birth weight and/or birth length was less than the 3rd percentile, adjusted for prematurity (gestational age). Between 3% and 10% of live births each year are diagnosed as SGA.

Turner Syndrome

Turner’s Syndrome occurs in 1 in 2,500 live female births. Approximately 98% of pregnancies with Turner’s Syndrome abort spontaneously and approximately 10% of fetuses from pregnancies that have spontaneously aborted have Turner’s Syndrome.

Do get in touch with us at [email protected] for any queries or clarifications.

We will be only too glad to be of help.

Connect with us!

We have created a Facebook page called Omkar’s Journey with Congenital Adrenal Hyperplasia to chronicle all possible events and scenarios in the life of a child with CAH, with a view to let new parents know what to expect.

Read More

The MAGIC Foundation India Turner Syndrome Division on Facebook

The MAGIC Foundation India Turner Syndrome Division group on Facebook is a closed group and is for discussion and sharing of information to provide support services for the families of children afflicted with Turner Syndrome. This is a safe place for parents to exchange and seek information that might help them deal with the problem. Note that posts which are not relevant to Turner Syndrome and which are advertisements for sales of products, services or groups will be deleted and the person posting the message will be removed from the group without notice. If you wish to join this group:

➤ Step 1: Search for the group page on Facebook.
  (https://www.facebook.com/groups/turnersyndromesupport.magicindia)
➤ Step 2: Please request to join.
➤ Step 3: Send a message to the Admin or an email to
[email protected] and let us know why you are interested in joining this group.