The MAGIC Foundation India, affiliated to The MAGIC Foundation, USA, was set up to spread the awareness of various children’s growth disorders, across India. This website is intended to provide general educational information and to help users more easily access information about children’s growth disorders.
Deepa Kannan
- Division Board Head: CAH
- Allied Functional Medicine Practitioner at Phytothrive (FNLP, CFSP)
- Yoga Acharya at Yogasopanam Wellness Pvt. Ltd.
- Co-Founder and Executive Director at The MAGIC Foundation-India
Website: www.magicfoundation-india.org
Email: [email protected]
Facebook page:www.facebook.com/themagicfoundationindia/
Facebook Community:www.facebook.com/groups/433557750183212/
“One decade ago, when my son Omkar was born and almost died of salt wasting Congenital Adrenal Hyperplasia, I was lost. When I did get the diagnosis that saved his life, I was angry, upset, guilty and in denial. I searched the internet for all the information I could get on this unknown condition called CAH, and came across There MAGIC Foundation in US. A lot of the information did not make sense to me, given the Indian scenario. Five years later, prompted by my son’s endocrinologist, I started CAH India with my husband Shyam Prasad Nair. It is truly fortitude that a couple of years ago, The MAGIC Foundation in US, offered us this wonderful opportunity to begin The MAGIC Foundation-India for support of six conditions including CAH. My vision for CAH support in India is to see no child born with CAH undiagnosed due to lack of awareness, or untreated due to lack of financial resources. Every CAH child in India is our child, and they deserve the chance to live!”
Isani Singh
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- Division Board Head: Turner Syndrome
- Harvard University, Cambridge MA, Class of 2022
- Area of Study: Statistics: Bioinformatics and Computational Biology, Global Health and Health Policy
- Researcher at Whitehead Institute at MIT as well as University of Colorado Anschutz Medical Campus
- Regeneron Science Talent Search 3rd Place Winner
- Intel International Science and Engineering Fair Grand Award Winner
- Variety of research publications and conference presentations
- Massachusetts General Hospital Turner Syndrome Clinic Volunteer
- Member of Turner Syndrome Research Network to help establish guidelines for Turner Syndrome care and support research opportunities, 2017
Website: www.magicfoundation-india.org
Email: [email protected] / [email protected]
“I started my Turner syndrome initiatives in India after I realized that wellbeing for Turner syndrome patients across the world is more than just about medical research, it requires relaying information to all those affected and providing support during those tough times following diagnosis. It’s important to me that girls and women with Turner syndrome in India feel healthy as well as optimistic and confident in their futures, not allowing society’s stigmas to determine their worth.”
Growth Awareness Day
September 20th is Children’s Growth
Awareness Day.
The MAGIC Foundation India will be conducting several awareness programmes on Growth Awareness.
Congenital Adrenal Hyperplasia
Congenital Adrenal Hyperplasia is an autosomal recessive genetic disorder, which means that it affects males and females in equal numbers, and that it requires both parents to pass on a gene in order for it to manifest as a disease. For a child to be born with any form of CAH, both parents must carry a gene for the disorder.
Growth Hormone Deficiency
Growth hormone (GH) is a protein made by the pituitary gland and released into the blood in brief pulses. The major way that GH promotes growth is by increasing levels of the hormone, insulin-like growth factor-1 (IGF-1), and its carrier protein, IGF binding protein-3 (IGFBP-3), in the blood.
Optic Nerve Hypoplasia
A child with the Syndrome of Optic Nerve Hypoplasia, also known as Septo Optic Dysplasia or DeMorsiers Syndrome, has under-developed optic nerves. The optic nerves carry messages from the eye to the brain. ONH is the single leading cause of blindness in infants and toddlers.
Russell Silver Syndrome
Russell-Silver syndrome (or Silver-Russell syndrome) is a rare genetic disorder characterized by delayed growth in-utero (IUGR) that spares head growth (meaning the newborn has a head size that is large for his body) and ongoing postnatal growth failure.
Small for Gestational Age
SGA (small for gestational age) generally describes any infant whose birth weight and/or birth length was less than the 3rd percentile, adjusted for prematurity (gestational age). Between 3% and 10% of live births each year are diagnosed as SGA.
Turner Syndrome
Turner’s Syndrome occurs in 1 in 2,500 live female births. Approximately 98% of pregnancies with Turner’s Syndrome abort spontaneously and approximately 10% of fetuses from pregnancies that have spontaneously aborted have Turner’s Syndrome.
Connect with us!
We have created a Facebook page called Omkar’s Journey with Congenital Adrenal Hyperplasia to chronicle all possible events and scenarios in the life of a child with CAH, with a view to let new parents know what to expect.
➤ Step 1: Search for the group page on Facebook.
(https://www.facebook.com/groups/433557750183212/)
➤ Step 2: Please request to join.
➤ Step 3: Send a message to the Admin or an email to
[email protected] and let us know why you are interested in joining this group.