Our mission is to spread the awareness of the conditions called such as Growth Hormone Deficiency, Congenital Adrenal Hyperplasia, Cushing’s Syndrome, Addison’s, Russel Silver and others, which are rare and so unknown, even in educated circles. It is our way to support parents of these children who go through so many challenges in bringing up a child with a growth disorder, even something as simple as admission to schools, which many parents take for granted with normal children.
The MAGIC Foundation India – Overview
The MAGIC Foundation India, affiliated to The MAGIC Foundation, USA, and registered as an official trust in India as the The MAGIC Trust, is an organisation that was set up to spread awareness of various children’s growth disorders, across India. It is a community of parents, grandparents and caregivers that support each other, a space for Paediatricians and Paediatric Endocrinologists to share knowledge, old and new, with each other.
Growth Awareness Day
September 20th is Children’s Growth
Awareness Day.
The MAGIC Foundation India will be conducting several awareness programmes on Growth Awareness.
People keep saying “Oh it’s so unfortunate that he was born this way.”
I reply, “but he is the reason for MAGIC coming to India.”
Deepa Kannan
Founder – The MAGIC Foundation India
Congenital Adrenal Hyperplasia
Congenital Adrenal Hyperplasia is an autosomal recessive genetic disorder, which means that it affects males and females in equal numbers, and that it requires both parents to pass on a gene in order for it to manifest as a disease. For a child to be born with any form of CAH, both parents must carry a gene for the disorder.
Growth Hormone Deficiency
Growth hormone (GH) is a protein made by the pituitary gland and released into the blood in brief pulses. The major way that GH promotes growth is by increasing levels of the hormone, insulin-like growth factor-1 (IGF-1), and its carrier protein, IGF binding protein-3 (IGFBP-3), in the blood.
Optic Nerve Hypoplasia
A child with the Syndrome of Optic Nerve Hypoplasia, also known as Septo Optic Dysplasia or DeMorsiers Syndrome, has under-developed optic nerves. The optic nerves carry messages from the eye to the brain. ONH is the single leading cause of blindness in infants and toddlers.
Russell Silver Syndrome
Russell-Silver syndrome (or Silver-Russell syndrome) is a rare genetic disorder characterized by delayed growth in-utero (IUGR) that spares head growth (meaning the newborn has a head size that is large for his body) and ongoing postnatal growth failure.
Small for Gestational Age
SGA (small for gestational age) generally describes any infant whose birth weight and/or birth length was less than the 3rd percentile, adjusted for prematurity (gestational age). Between 3% and 10% of live births each year are diagnosed as SGA.
Turner Syndrome
Turner’s Syndrome occurs in 1 in 2,500 live female births. Approximately 98% of pregnancies with Turner’s Syndrome abort spontaneously and approximately 10% of fetuses from pregnancies that have spontaneously aborted have Turner’s Syndrome.
Connect with us!
We have created a Facebook page called Omkar’s Journey with Congenital Adrenal Hyperplasia to chronicle all possible events and scenarios in the life of a child with CAH, with a view to let new parents know what to expect.
➤ Step 1: Search for the group page on Facebook.
(https://www.facebook.com/groups/433557750183212/)
➤ Step 2: Please request to join.
➤ Step 3: Send a message to the Admin or an email to
[email protected] and let us know why you are interested in joining this group.